Mon, February 27th, 2023

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Email Sent by the Excellence in Pediatrics Institute

Dear Colleague,

We are pleased to invite you to a new Spot the Early Signs of MPS Webinar on 2 March 2023, at 18:00 Central European Time (12:00 US Eastern Standard Time - EST, 09:00 US Pacific Standard Time - PST). This is the first of six webinars in March as part of Series 5 of EIP’s Spot the Early Signs of MPS Program.

Webinar 1
Language: English
Presenter: Dr Dafne Horovitz, Instituto Nacional de Saude da Mulher, da Criança e do Adolescente Fernandes Figueira, Fiocruz, Rio de Janeiro, Brazil

Attendance is free.

Can't attend the live session? By registering, you will receive a link to watch the video after the session concludes.

A certificate of attendance will be provided by the Excellence in Pediatrics Institute to those who attended live or watched the video after the live session is organised.

Don't forget to mark your calendar!

WEBINAR 1 LEARNING OBJECTIVES

Practical advice on spotting the signs of MPS as early as possible and the importance of an early referral.
Reviewing the characteristic signs, clinical features and symptoms of MPS disorders.
Recent Case Study examples of musculoskeletal manifestations of mucopolysaccharidoses.

NEXT WEBINARS IN THE SERIES

8 March 2023 at 18:00-18:45 CET

M2: Spot the Early Signs of Mucopolysaccharidosis (MPS) - Practical Case Studies

LANGUAGE: SPANISH
Presenter: Dr Martha Solano, Fundacion Cardio Infantil, Bogota, Colombia

9 March 2023 at 18:00-18:45 CET

M3: The Importance of Spotting the Early Signs of MPS - Established & Emerging Treatments

LANGUAGE: ENGLISH
Presenter: Dr Raymond Y. Wang, Children's Hospital of Orange County, California, United States

14 March 2023 at 18:00-18:45 CET

M4: Exploring Real-World Case Studies to Help You Spot the Early Signs of Mucopolysaccharidosis (MPS)

LANGUAGE: ENGLISH
Presenter: Dr Carolina Fischinger, Hospital de Clinicas de Porto Alegre, Rio Grande del Sur, Brazil

15 March 2023 at 18:00-18:45 CET

M5: Spot the Early Signs of MPS - Practical Case Studies - Established & Emerging Treatments

LANGUAGE: SPANISH
Presenter: Dr Hernan Amartino, Hospital Universitario Austral, Buenos Aires, Argentina

29 March 2023 at 18:00-18:45 CET

M6: Better Understanding the Mucopolysaccharidosis (MPS) Patient and Family's Needs

LANGUAGE: ENGLISH
Presenter: Dr Christina Lampe, University Hospital of Gießen, Germany

This educational activity is designed for an international audience of General Pediatricians, General Practitioners, Pediatric Endocrinologists, Pediatric Rheumatologists and other physicians and healthcare professionals with an interest in Metabolic Diseases.

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SPOT THE EARLY SIGNS RESOURCE CENTER

EIP has launched the Spot the Early Signs Resource Centre to spread education in local medical communities and further develop and expand the trained on MPS frontline healthcare professionals network. The Resource Centre allows members to collaborate, engage and interact. They can easily find information and education when needed - both for members and to share with colleagues. All recorded webinars are available to view without charge via the Resources Section of the site, along with further information on the Faculty, the Campaigns, the Upcoming Live New Webinars, and how you can Join Us to make your colleagues ‘think rare’ at every opportunity.

Visit the Resource Center

The MPS Resource Centre is independently developed and managed by EiP in terms of content, topics and speakers appointed. Unrestricted grants are sought to support EIP activities and Sanofi has provided an unrestricted grant to partially support EIP's work on the misdiagnosis of metabolic disorders.

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