Misdiagnosis of Mucopolysaccharidosis (MPS) results in late diagnosis and the late start of treatment, which has significant consequences on long-term outcomes. This gap usually results in confusing symptoms with other conditions, most notably trying to address symptoms directly and therefore delaying actual diagnosis and treatment, or referring the patient to the wrong pediatric specialties causing further delays in the condition’s management chain.
Over the past 4 years, EIP is proud to have built a network of 1800 trained healthcare professionals who have attended one or more of the webinars. This sub-network of the EIP Community now have MPS at the top-of-their-minds and are ready to spread the word and share the ’think rare’ message to their colleagues. To assist EIP has launched this dedicated Spot the Early Signs Resource Centre to spread education in local medical communities, and further develop and expand the trained on MPS frontline healthcare professionals network.
All recorded webinars are available to view without charge via the Resources Section of the site, along with further information on the Faculty, Campaigns and how you can Join Us to make your colleagues ‘think rare’ at every opportunity.
The Resource Centre allows members to collaborate, engage and interact and where they can easily find information and education when needed - both for members and to share with colleagues.