Think Rare

Understanding the Path to Successful MPS I Diagnosis in Children


CAMPAIGN MISSION

EIP’s Spot the Early Signs Programme aims to fight under-diagnosed or late-diagnosed conditions for which treatments are available and where early detection and early treatment could make a significant difference in the condition's development, the quality of life and the survival of patients. Following case studies and peer-to-peer educational approach, the program targets to improve the way child healthcare professionals advise and treat the children and families they support. Pediatricians and family doctors are likely to be the first healthcare professionals to observe symptoms, and it is important to help these front-line clinicians suspect, diagnose, and refer patients.

The Program is campaign led and makes the most of EIP’s network of members and followers to spread the word on social media to members and their colleagues around the world asking them to 'think rare’ in every consultation.

 

CLICK AND SHARE 

Click on any of the banners below and you will be able to directly share the message using your Twitter, Facebook, Linkedin or Instagram account. Help us spread the word and pledge your support. 

More banners and messages to share. Click on any of the banners below and you will be able to directly share the message using your Twitter, Facebook, Linkedin or Instagram account. Help us spread the word and pledge your support. 


DOWNLOAD THE IMAGES 

Follow the links below to download the campaign images and banners (1200x628px). Use them freely on your website and your posts on social networks. 

 

EXAMPLE MESSAGES TO TWEET/POST WITH THE IMAGES

View 30 free @EIP_Institute webinars to learn the various manifestations of MPS in children depending on your specialty. #ThinkRare and suspect MPS in every consultation. Access the #EIPSpotTheEarlySigns resource centre at bit.ly/EIPSESMPS

Learn how as a front-line #PediatriciansForMPS you can best support patients diagnosed with MPS and their families. Visit the @EIP_Institute #EIPSpotTheEarlySigns resource centre and access webinars and readings that will help you understand their needs bit.ly/EIPSESMPS

As a Front-line #PediatriciansForMPS who understand MPS pledge your time to connect your national MPS Society and help them in the tremendous work they are doing to support MPS patients and their families. More at @EIP_Institute resource centre bit.ly/MPSSOCIETIES

Understand what to do next after detecting a possible sign of MPS in one of your patients. Speedy referral to a Specialist Centre is of paramount importance. #ThinkRare, be prepared and learn where to refer suspected cases. More at @EIP_Institute resource centre bit.ly/MPSSOCIETIES

Know the MPS Specialists in your country and internationally. They can assist you with the correct diagnosis and referral especially with complex cases that require a Multidisciplinary Approach.  More at @EIP_Institute #EIPSpotTheEarlySigns resource centre bit.ly/MPSSOCIETIES


HASHTAGS TO USE

  • #EIPSpotTheEarlySigns
  • #PediatriciansForMPS
  • #ThinkRare

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